About Paige
In the summer of 2013, both Cliff and Amber were excited to learn that they were finally going to have a baby!
Unfortunately that excitement quickly turned to fear. While at their 14 week ultrasound, the technician noticed something that didn’t seem right, they were informed that their baby had been diagnosed with an omphalocele.
An omphalocele is a birth defect that occurs within the abdominal wall of the fetus, forcing the organs in the belly to develop in a sac outside of the body. There were approximately 775 omphalocele births in the US last year (roughly 1 out of every 5,400).